Connect with people who share your condition,anonymously.
mynachat is a permissioned message board where people with the same disease can find each other, without revealing anything more about themselves.
POST /api/my/healthinfo/get-six-medical-info HTTP/1.1 Host: myna.go.jp Cookie: SESSION=9f2c1e7a4bd03e58a1c6 {"commonHeader":{"screenId":"hm_mc_________"},"reqBody":{"cipCategory":"SBM"}} HTTP/1.1 200 OK {"resultCode":"0000","resBody":{"diseaseList":[ {"name":"潰瘍性大腸炎","icd10":"K51.9", "startDate":"2024-05-13","institution":"みなと総合病院"}, {"name":"うつ病","icd10":"F32.9", "startDate":"2025-11-02","institution":"さくら心療内科"}, {"name":"本態性高血圧症","icd10":"I10", "startDate":"2023-02-20","institution":"こうち内科"}]}}
Online patient groups have a trust problem
Online patient groups can be a lifeline for people with rare diseases. They offer a community for sharing timely, valuable information, and provide emotional support and solidarity during difficult times. But many patients would rather stay anonymous, and that forces a tradeoff.
Public groups
Anyone can join, including people who don't have the disease or who have conflicting interests, such as salespeople.
Private groups
Safer, but hard to find. Someone has to review each applicant, and that reviewer ends up holding sensitive medical information that could be misused.
What the group learns, and what it never does
Learns
- That you are a unique person
- That you share the same diagnosis
Never learns
- Your name, address, dob
- Your other diagnoses, medicines, hospitals or visit dates
- Which other groups you belong to
Active Groups
For anything else, search your condition and register interest if there's no group yet.